Waldenström Macroglobulinemia Support Group
Waldenström Macroglobulinemia New Zealand (known as Waldos) is an Affiliate of the
(IWMF) International Waldenström Macroglobulinemia Foundation. We are a non-profit organisation. As at August, 2023, there are 51 (32 males and 19 females) who have joined our affiliate and living in New Zealand.
Also known as a Lymphoplasmacytic Lymphoma (LPL), this very rare indolent Non-Hodgen's Lymphoma has a world wide incidence of two to three in a million per year. You are not alone and it is free to join us. We aim to help you live with Waldenströms.
Since September, 2022, we have been working to have more treatments funded by Pharmac as we lag well behind other countries where newer drugs are standard treatment now.
THE 29TH ANNUAL EDUCATIONAL FORUM
The 29th Annual IWMF Educational Forum will be held on 4th to 6th May (NZ Day & Time zone) to learn from medical experts and WM community members around the world.
Videos from Ed Forums HERE!
WhiMSICAL Study
Waldenström Macroglobulinemia Study Involving CART-WHEEL a world-first, ethically-approved, comprehensive global database of patient-derived data about your WM experience
A-NZ BEACON Newsletter
This is a periodical magazines published to provide information that relates to members of WMozzies & Waldos in NZ. This is more local information. MORE
Rare Disorders New Zealand
"No country can claim to have achieved universal healthcare if it has not adequately and equitably met the needs of those with rare diseases." MORE
Screenshot from our June, 2023 Zoom meeting.
L&BCNZ are hosting a Zoom meeting for us on
6th May at 11am. .
Licence provided by the IWMF to enjoy virtual get-togethers.